Active lifestyles for children with chronic disease
Nearly half of the children in the Netherlands do not engage in enough physical activity. For children with chronic diseases, maintaining an active lifestyle is even more crucial, as it significantly improves their overall health and helps prevent complications of their disease. This project aims to explore how smart digital technology (e.g., wearable fitness trackers, mobile applications, and sensor-based systems) can create innovative ways to monitor, motivate, and enhance daily physical activity for children with chronic diseases in a home setting.
By integrating insights from diverse stakeholders (e.g., families of children with chronic disease, healthcare professionals) and multiple disciplines (e.g., family sociology, health psychology, industrial design), we will investigate how to effectively use technology to empower not only the children but also their families and broader support networks. Initially, we will focus on children with congenital heart defects, who often face greater physical and mental barriers to participating in sports and exercise. Subsequently, we will expand our approach to benefit children with other chronic conditions. Our ultimate goal is to create a smart, adaptive digital platform that supports children with chronic diseases and their parents in achieving an active, healthy lifestyle.
Our ongoing projects
Resources
Scientific Publications
- Pre-print – Hardon HJ, Van Kerkhof YN, Bartelds B, Kammeraad JA, Van Deutekom AW, The validation and accuracy of wearable heart rate trackers in children with heart disease: a prospective cohort study.JMIR Formative Research. URL: https://preprints.jmir.org/preprint/70835 [Link]
Media
- NOS – Shorttrackster Yara van kerkhof doet onderzoek voor jonge hartpatientjes [Link]
Core team
Annabel Vreeker (EUR), Arend van Deutekom (Erasmus MC), Hidde Hardon (Erasmus MC), Jiwon Jung (TU Delft), Kim Boltjes (TUD), Maaike Kleinsmann (TUD), Femke Wildschut (Erasmus MC), Renske Keizer (EUR), Rebecca Meuldijk (Erasmus MC), Jelle Man (Erasmus MC), and Femke Wildschut (Erasmus MC)
For more information, please contact:
Related items
Publication
New outcomes Wearables research
Wearable devices, such as wristbands and smart ECG shirts, could provide a comfortable alternative for measuring heart rate in children with congenital heart defects or heart rhythm disorders
Video
Arend van Deutekom about Healthy Start
Arend about his research within Healthy Start
Funding
Toolkit ‘HartActief’
How can children with cardiac disease exercise and play sports safely and enjoyably?
Event
Colloqium ‘What moves you?’
Conversations about how to stimulate an active and healthy lifestyle for chronically ill children
Media
Olympic champion shorttrack Yara van Kerkhof about her research
NOS-documentary about the graduation research of Yara for young heart patients
Interview
The story of Arend van Deutekom
‘How can we encourage children with heart defects to engage in more enjoyable physical activities?’